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Reassurance

God puts people in our path, even when we don’t know we need them. It’s always been my desire that people who follow this Blog learn about this disease and appreciate our reliance on faith and positive attitude.  We’ve been lifted up family, friends and strangers.  Here’s an example: I first met Joe several years ago when I was invited onto his softball team for a local softball tournament.  This occurred not long after I was diagnosed with, at that time, an unknown cancer.  At a restaurant after the game I learned that Joe and his wife Tammy pastor a church here in the Valley. Joe prayed for me that day and indicated he would continue to follow my situation.   Last Thursday my 70+ Sidewinders softball team had a scrimmage game with the 65+ Sidewinders team.  As I came up to bat for the first time the catcher was Joe.  Before the first pitch he briefly said, “we need to talk after the game.”   I stayed after the game and Joe told me an inspiring story about his wife Tammy and a serious
Recent posts

Tomorrow, 1954

“I had more fun on my 70th birthday than your average 10 year old!” The last blog we asked for prayers for a good scan on this new trial.  The scan was on the 19th and my doctor’s meeting was on the 20th.  Everything you do at a hospital begins with, “what’s your full name and birthdate?”  For every appointment on the 20th I had fun answering that question with, “Mark Daly, tomorrow 1954!” Before the doctor comes in for the consult, other members of the team visit to cover certain issues.  We were slowly put at ease as it seemed each person who came in to discuss something seemed to be in a good mood, especially when they learned my birthday was the next day.  One visitor was Patricia, my Research Coordinator.  She takes care of all my details including scheduling and she brought up details for April and May visits.  That seemed promising. Next, the Physician’s Assistant came in to discuss my bloodwork and the scan.   It was a little unnerving as we had never met this PA. The last time

The Third Time’s A Charm

“We consider you a ‘Hot Match’…Dr. Paula Pohlmann MDAnderson doctors always seem to know how to make a patient feel special!  I had a video meeting with Dr. Pohlmann in mid-January to review a possible new clinical trial for my participation  I was so anxious to hear about a new trial that I missed the opportunity to say something smart-aleck like, “you’re not so bad yourself Doc!” Diane and I had gone a full month waiting to hear what the team of doctors found for my next treatment.   This trial is in the same Targeted Therapy category as my second trial.  I am taking an oral pill once a day but rather than taking the pill two weeks on and two weeks off I will be taking a pill every day.  There are lots of positive things about this trial.  Foremost, is that everyone tells us this drug is well tolerated with minimal side effects.  The Phase 1/2 trial is in the dosing stage, meaning they are still figuring out how much medicine humans can handle. This trial is not exclusive to MDAnders

Shifting Gears

"Sometimes you eat the bear, sometimes the bear eats you"                                              Preacher Roe, Brooklyn Dodgers Clinical trials seem to be a finicky process.  All year you’ve been reading about how my tumors shrunk slightly with my CT scans every two months.  However, recently there has been slight growth in each scan.  On our last visit the tumors grew again and Dr. Yap told us there is no use continuing this trial, it’s time to look for something new.   For those of you keeping score at home, that’s the second time we’ve been moved out of a trial because of growth.  As a matter of fact, the first time was almost exactly one year ago, December of 2022.  The doctor told us he considers my time in this recent trial to be a success.  That might seem counter intuitive at first considering this news, but when we really think about it, we’ve had an amazing year on this medicine.  For the most part the monthly treatment was harmless, there were no real side

“Say Hello To My Leetle Friend’

This one falls under the catagory of "Full Disclosure"  I don't often buy "message" T-shirts but this one struck a cord with me. This shirt is sold by Til Valhalla Project, a non-profit that focuses on U.S. Veterans issues.  They produce inspiring, patriotic t-shirts and other items to enable them to supply memorial plaques to veterans and their families.  They have provided 9,000+ hours of therapy and donated over 1.3 million dollars to veteran’s issues. This one appealed to me on many levels.  It made me start thinking more about the Be Kind efforts across the nation.  Imagine if we all started to think this way before  we judged someone, or lost our temper at the driver who cut us off in traffic, or engaged with someone who doesn’t think the way we think.  Wouldn’t the world be a better place?  We really do not know what others may be going through.                                                      Now we who are strong have an obligation to bear the weakn

He Whom God Helped

 How can you guys afford this clinical trial? That’s a question we’re asked from time to time.  Today’s entry is dedicated to the incredible resources available to those fighting cancer. In our first 12 months of treatment at MDAnderson Cancer Center we have traveled to Houston 23 times.  Mostly, we depart from Phoenix but of course, this summer we have started in Alaska the last five trips.  All 23 trips were on Southwest Airlines except the five Alaska departures.  Southwest has an arrangement for MDAnderson patients, whenever we need to change a flight there is never a fee, even up to the last minute.  In spite of some Southwest debacles around the country we have been very blessed with Southwest Airlines. Our hotel stays are generally 1-5 days in duration.  Initially, we explored the charitable housing options offered to patients, we tried several hotel chains, and we have now settled on staying at the Rotary House which is owned by MDAnderson and is connected directly to the hospi

Still Shrinking

“Do girls know about shrinkage?:   George Constanza  We often joke about shrinkage because my tumors continue to shrink with every CT Scan.  We return to MDAnderson every 28 days and I get a scan every other visit.  Each one has shown the tumors smaller that the scan before.  I would say, the prayers are working…we could have only dreamed the new medicine would be this effective.  God has us in the right place at the right time. The doctors have a matrix that shows my overall cancer has reduced by 19.4% in just 7 months! The last visit I had another rise in the protein in the urine.  As I’ve mentioned, this is the only side affect I have experienced.  The good news is it doesn’t manifest itself so that I feel any affects.  It’s mostly a doctor concern to protect my kidneys.  The protocol is to reduce my dosage by 50% for the next treatment.  But, as my doctor has pointed out, the dosage hasn’t affected the drug’s ability to kill my cancer.  My tumors continue to shrink regardless of th