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Showing posts from August, 2022

Houston, We Have Liftoff!

 We finally got final acceptance for the clinical trial at MDAnderson in Houston. It was a bit of an anxiety filled week waiting for word from MDA whether or not I would be qualified for the trial.  When we left Houston last week they already had my first treatment scheduled in my portal for next Monday the 29th.  So, we naturally assumed all the tests I took turned out fine and I was a shoo-in.  We even booked the flight and hotel.  However, every time I checked with my contact nurse during the week, nothing was final.   On Wednesday she told me a team of doctors were reviewing my final CT scan and I would know something soon.  Wednesday turned into Thursday without a peep.  What could they be reviewing? Then, on Friday morning we got word everything was final.  What a relief! We spent the week looking at resources available to make these trips easier on us…and our pocketbook.  For example, the closest airport to the Medical District is 8-9 miles away.  The local hotels and housing ch

New Path, New Hope

We made God laugh again! If you tell God your plans He laughs, and laughs, then shows you the real plan….His! Our trip to MD Anderson was amazing.  Our plan was to discuss a specific clinical trial that Rachel and Laura had researched for us.  Prior to the trip I wasn’t able to talk on the phone to anyone at MDA about clinical trials.  Their requirement is that you schedule a 5 day trip to Houston and go through a series of testing before you meet anyone regarding a trial. Our first meeting on Friday morning began with a PA for my new doctor.  She introduced herself and promptly brought up my entire medical record from this disease.  Before I could even ask her about clinical trials she told us they already have a trial in mind for me.  Then, my new Dr. Bent came in and had even more enthusiasm for this brand new trial.  She told us she had already talked with the principal director of the trial and they think it would be perfect for me! God stepped in and changed the narrative we were

Let’s Get Back on the Horse

Well, it is now more than three weeks since the surgery.   I’ve been sort of melancholy lately and as such I’ve been remiss in keeping this blog updated.  But, I’m over my funk and it’s time to get back on track with defeating this nasty cancer. I had amazing home care to help Diane get through the last few weeks, with Rachel, Joel, Diane’s sister Barbara, and my sister, Melissa and my Mother, Willie.  We had some great family time and I feel very loved.  I’m getting stronger everyday but my incisions are still very tender to the touch.  Everybody has returned home, so Diane and I now have the house to ourselves again. During this time we have been researching clinical trials and I’m starting to get involved with the Mesothelioma Foundation.  They have lots of up to date information about trials, medicine and success stories.  Rachel and Laura Lester worked together on finding clinical trials and we have decided to travel to Houston to check out a clinical trial at MDAnderson Cancer Ce