Skip to main content

That Circumstances Would Change

For those of you that had a chance to listen to our favorite Christian song by Katy Nichole that I posted in Killing Cancer 2 you’ll recognize this blog title in the full lyric “I pray for your healing that circumstances would change.”

In case you missed it:: https://youtu.be/YqHjjZz1Syg 

Well, circumstances are changing and things are moving fast!  Last blog I asked for prayers that we might be able to stop chemotherapy after 3 sessions and reevaluate if it would be right to move straight to the HIPEC surgery.  Well, Monday those prayers were answered.  Our oncologist Dr. Kalmadi set up a meeting with Dr. Wasif at Mayo here in Phoenix  He is very likely the most experienced HIPEC surgeon in the Southwest.  We absolutely loved him and have made the decision that he’s our guy.  

At the end of the meeting he gave us a plan.  We are finishing this third chemo session.  He will conduct another laparoscopic surgery this Friday, then we are going to do another MRI later today, both procedures so he can plan his surgery.  He and Dr. Kalmadi are very well acquainted and they will make the final decision on whether or not we need additional chemotherapy.  We are feeling very positive that I’ll be ready.

Our only other option was to shop around the country for another qualified surgeon in some strange city and then make arrangements to move there for roughly a month with housing costs, car rentals, and general inconveniences.  So this development makes us very happy.  Diane can sleep in her bed, Rachel can be here, Melissa can be here, and most importantly Willie is only :20 from Mayo!

And, here’s the bonus: Dr. Wasif said he wants me to have 4-6 weeks with no treatment to give the chemo a chance to be eliminated.  He advised me to use the time to get rest, gain some weight back and begin to exercise.  He said, “you might want to start slowly with short evening walks.”  I smiled and said, “Doc, I played 2 hours of pickleball this morning!”

Killing Cancer 3:

Here’s the latest on my health.  Yesterday was chemo session #3 and I had the best day yet.  Both the other sessions I just sort of nodded and didn’t bother any of the other patients.  Yesterday, I met new friends! I have two people to thank for that. Mom has a dear friend, Robin C who is so faithful at meeting Mom every week or so for lunch. And Robin is an amazing seamstress.  Remember the Port Pillow that Willie made for me to keep the seatbelt strap from irritating the port?  Robin made a bagful of at least 15 pillows for me to hand out at Chemotherapy!  It’s easy to meet people when you have cool gifts.  We love you Robin!


So, if you’ve been following along you know that the previous two chemo sessions I was pretty macho and decided not to take the nausea meds until I felt nauseous.  As such, the night of the chemo session was usually pretty restless with a lot going on in my belly.  This time I started the meds the day before the chemo and on the way home from chemo I tried another capsule of RSO (the marijuana med).  Last night I slept like a baby!

I’ve still got some side affects going on but I feel pretty blessed that they seem minor.  One of those side affects is commonly known as “Chemo Fog”  I noticed a little of it the first two sessions, but it seems more prevalent yesterday and today.  I find my self telling Diane things like, “You know I think this new Major League Pickleball league is going to be successful because……I’ll finish this story later…”

It’s getting so hot here, we are really looking forward to a trip to Alaska which is looking very likely during the 4-6 weeks waiting for the surgery with no more chemotherapy to hold us here, fingers crossed.  The doctor told me to do all my normal activities during that time.

To beat the heat in the meantime, our friends John and Leeann who spend the summers at their lake house on Lake Michigan have offered us the use of their pool.  We feel like we have our own private resort pool, minus the cabana boys to bring us drinks with umbrellas!  Thanks again you two!


To those of you following this blog, your support means so much to us.  We love the comments and prayers.  I understand its been a little hard to navigate so I made some changes and I have some recommendations.  One thing that helps if you don’t see a certain post is to click on the Home button right below the rafting picture and the intro to the blog.  Also, the three small dots in the upper right hand corner will give you access to all the posts.  Plus, I changed the opening page to show 15 posts instead of 10.  I hope that helps everyone navigate easier.

Comments

  1. That's GREAT news! I am so happy for you! Take care, Mark and his to Diane... All our love ❤️

    ReplyDelete
  2. Can’t wait to see you both in AK!

    ReplyDelete
  3. Mark, I heard the song Killing Cancer and thought of you immediately. God has blessed you with strength and faith thru this daunting process- he has guided you. Team Daly- prayers for continued success and a winning PickleBall season to boot.🤗❤️ Willies Friend , Robin

    ReplyDelete
  4. It was great to see you and Diane the other day! You both look great and your attitudes are inspiring!! BTW, the picture of you in the raft, we love it, can you give some background?

    ReplyDelete
  5. Well I'm not doing this right because I'm not anonymous. But this is wonderful! Not only the pace but the path we are heading! Fingers crossed you get to escape the heat for a few weeks and gather strength in your beloved Alaska. Such a beautiful state. Im sure it will fill your soul and fill the spiritual tank!! Meanwhile keep up the blog! Its 👍

    ReplyDelete
  6. Ok im figuring this out. Just for interesting things to mull over and think about watch a movie called A Civil Action.

    ReplyDelete
  7. Every time I hear “In Jesus Name”, your song, I pray for you and Diane. God is so good and I’m so happy you may be finished with chemo soon. It’s hot here too and Alaska sounds like an excellent plan! One day at a time…you’ll get through this. You’ll be beating me on the courts again before you know it!

    ReplyDelete

Post a Comment

Popular posts from this blog

The Battle Begins

I’ve never tried to create a blog, in fact I’ve never even looked at someone else’s blog.  So, this project may start off a little slow.  My plan is to post frequently about what’s currently happening.  But, people also want to know when this started, what were my symptoms, and why did it take so long to get this diagnosis.  So I will, from time to time, create posts that will be labeled “Prologue”. That story will begin on November 19th, 2021 and I’ll add stories until I reach today’s date.  April 18th, 2022 Today I finally have a comprehensive diagnosis.  It’s not what we were hoping for but at least we can now proceed with the attack. I have Peritoneal Mesothelioma.  Most people think of Mesothelioma as a lung disease but of the 3000+ yearly cases of mesothelioma only10-15% occur in the abdomen.  The primary cause of mesothelioma is from exposure to asbestos.  Later, I will tell you the story of my time working around raw asbestos.   I would like to offer readers some advice.  It mi

Shifting Gears

"Sometimes you eat the bear, sometimes the bear eats you"                                              Preacher Roe, Brooklyn Dodgers Clinical trials seem to be a finicky process.  All year you’ve been reading about how my tumors shrunk slightly with my CT scans every two months.  However, recently there has been slight growth in each scan.  On our last visit the tumors grew again and Dr. Yap told us there is no use continuing this trial, it’s time to look for something new.   For those of you keeping score at home, that’s the second time we’ve been moved out of a trial because of growth.  As a matter of fact, the first time was almost exactly one year ago, December of 2022.  The doctor told us he considers my time in this recent trial to be a success.  That might seem counter intuitive at first considering this news, but when we really think about it, we’ve had an amazing year on this medicine.  For the most part the monthly treatment was harmless, there were no real side

Still Shrinking

“Do girls know about shrinkage?:   George Constanza  We often joke about shrinkage because my tumors continue to shrink with every CT Scan.  We return to MDAnderson every 28 days and I get a scan every other visit.  Each one has shown the tumors smaller that the scan before.  I would say, the prayers are working…we could have only dreamed the new medicine would be this effective.  God has us in the right place at the right time. The doctors have a matrix that shows my overall cancer has reduced by 19.4% in just 7 months! The last visit I had another rise in the protein in the urine.  As I’ve mentioned, this is the only side affect I have experienced.  The good news is it doesn’t manifest itself so that I feel any affects.  It’s mostly a doctor concern to protect my kidneys.  The protocol is to reduce my dosage by 50% for the next treatment.  But, as my doctor has pointed out, the dosage hasn’t affected the drug’s ability to kill my cancer.  My tumors continue to shrink regardless of th